Here is our PVNH Support & Awareness pamphlet. It was created in August 2012 with the help of our PVNH experts and launched officially on PVNH Awareness Day, August 7, 2012. It has since been updated, with continued the guidance and help of our experts around the world. We invite you to download the PDF to share it with your family, friends and the medical community. 2016-pvnh-pamphlet
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