Rosanne Roberts
Ahsley Shepard
Sarah-Jill Rush
Claire Win
| RosanneRoberts |
| ashleynshepard |
| cara.moynes |
| JudyKillam |
| silviatravieso |
| mp.dupont |
| cathyfrechette |
| purky1 |
| jo_boddy |
| elauzon |
| martinelizotte |
| helen.hallsworth |
| mariecyr |
| cmm930 |
| jackiedbull |
| karen.munro |
| julessteck |
| Sarah-JillRush |
| kateguiliano |
| kateguiliano |
| josscroft |
| linden.woodyard |
| emma.hardiman1 |
| hmassie |
| anneb60 |
| clairewin1976 |
Hi,
My son has Periventricular nodular heterotopia and we are new. Can we join your group?
Thanks
Caroline
Hi Caroline, Sorry about the delay in getting back to you. There is a
few steps to take before joining. I will contact you by email. Thank you, Yolaine
My son has recently been diagnosed with PVNH and we have not been able to find a doctor or consultant who understands or can treat his symptoms.
We live in Scotland , does anyone have contact with a doctor anywhere in the UK who is aware of the condition.
Thanks
Hi, My apologies for the very delayed response. We do have an expert in Glasgow. I will send you an email with details. There are also experts in Great Britain. Yolaine
Hi, My apologies for the very delayed response. We do have an expert in Glasgow. I will send you an email with details. There are also experts in Great Britain. Yolaine