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Hi,
My son has Periventricular nodular heterotopia and we are new. Can we join your group?
Thanks
Caroline
Hi Caroline, Sorry about the delay in getting back to you. There is a
few steps to take before joining. I will contact you by email. Thank you, Yolaine
My son has recently been diagnosed with PVNH and we have not been able to find a doctor or consultant who understands or can treat his symptoms.
We live in Scotland , does anyone have contact with a doctor anywhere in the UK who is aware of the condition.
Thanks
Hi, My apologies for the very delayed response. We do have an expert in Glasgow. I will send you an email with details. There are also experts in Great Britain. Yolaine
Hi, My apologies for the very delayed response. We do have an expert in Glasgow. I will send you an email with details. There are also experts in Great Britain. Yolaine