Circle of Fans

5 Responses to Circle of Fans

1. Caroline Whitehead says:

   December 28, 2016 at 5:38 pm

   Hi,

   My son has Periventricular nodular heterotopia and we are new. Can we join your group?

   Thanks
   Caroline

   Reply
   • Yolaine Dupont says:

     January 1, 2017 at 9:37 pm

     Hi Caroline, Sorry about the delay in getting back to you. There is a
     few steps to take before joining. I will contact you by email. Thank you, Yolaine

     Reply
2. Blair1987 says:

   February 9, 2017 at 2:01 am

   My son has recently been diagnosed with PVNH and we have not been able to find a doctor or consultant who understands or can treat his symptoms.
   We live in Scotland , does anyone have contact with a doctor anywhere in the UK who is aware of the condition.
   Thanks

   Reply
   • Yolaine Dupont says:

     March 3, 2017 at 6:55 pm

     Hi, My apologies for the very delayed response. We do have an expert in Glasgow. I will send you an email with details. There are also experts in Great Britain. Yolaine

     Reply
   • Yolaine Dupont says:

     March 3, 2017 at 6:55 pm

     Hi, My apologies for the very delayed response. We do have an expert in Glasgow. I will send you an email with details. There are also experts in Great Britain. Yolaine

     Reply