Circle of Fans

Rosanne Roberts

Ahsley Shepard

Sarah-Jill Rush

Claire Win

RosanneRoberts
ashleynshepard
cara.moynes
JudyKillam
silviatravieso
mp.dupont
cathyfrechette
purky1
jo_boddy
elauzon
martinelizotte
helen.hallsworth
mariecyr
cmm930
jackiedbull
karen.munro
julessteck
Sarah-JillRush
kateguiliano
kateguiliano
josscroft
linden.woodyard
emma.hardiman1
hmassie
anneb60
clairewin1976

5 Responses to Circle of Fans

  1. Caroline Whitehead says:

    Hi,

    My son has Periventricular nodular heterotopia and we are new. Can we join your group?

    Thanks
    Caroline

    • Yolaine Dupont says:

      Hi Caroline, Sorry about the delay in getting back to you. There is a
      few steps to take before joining. I will contact you by email. Thank you, Yolaine

  2. Blair1987 says:

    My son has recently been diagnosed with PVNH and we have not been able to find a doctor or consultant who understands or can treat his symptoms.
    We live in Scotland , does anyone have contact with a doctor anywhere in the UK who is aware of the condition.
    Thanks

    • Yolaine Dupont says:

      Hi, My apologies for the very delayed response. We do have an expert in Glasgow. I will send you an email with details. There are also experts in Great Britain. Yolaine

    • Yolaine Dupont says:

      Hi, My apologies for the very delayed response. We do have an expert in Glasgow. I will send you an email with details. There are also experts in Great Britain. Yolaine

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