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World PVNH Disorder Awareness Day
2017 World PVNH Day Events
World PVNH Day August 7, 2016
2015 – 4th edition
2018 PVNH Awareness Day Events
About
About PVNH
What is PVNH
PVNH Awareness Pamphlet
Life with PVNH
Ella's Disease: PVNH4
Faces of PVNH
Ella
Yolaine, Ella’s Mom
Jacqueline
Maggie
Jackie’s daughter
Jonathan
Joanna, Jonathan’s Mom
About PVNH Support & Awareness
Mission
Research
Current Research Projects
Advocacy
Alliances & Resources
PVNH Around the World
Copyright
Medical Disclaimer
About Ella
Ella’s Story
Video of Ella’s Story
Ella’s Fast Facts
About Ella’s Mom
Dealing with Medical Professionals
PVNH Awareness Month
Blogs
In The News
Ella & Mom in the Media: Interviews and more
Press Releases
World PVNH Day 2016 – Press Release
2013 WORLD PVNH DISORDER AWARENESS DAY
Aug. 3, 2012 – Launch of First World PVNH Support & Awareness Day
Centres of Excellence for PVNH Care
Germany
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Thank you for your donation
Contact
Hall of Donors
Circle of Fans
Circle of Friends
Call for Abstracts
Volunteers Needed
PVNH Awareness Month
March is PVNH Disorder Awareness Month! Find out more about #MarchOnPVNH on our PVNH Support & Awareness Facebook Page
#MarchOnPVNH
#MarchOnPVNH
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