In August 2012, as Yolaine Dupont prepared to posthumously celebrate her daughter Ella’s 4th birthday, PVNH experts from around the globe came together to declare August 7 “World PVNH Disorder Awareness Day”. First to sign the declaration, was Dr. S. Robertson (New Zealand), followed by Drs. C. Cordoso and C. Goizet (France), B. Chang (USA), Dr. Kasper (Germany), R. Guerrini (Italy), R. de Coo (Netherlands), D. Morris-Rosendhal (UK), C. Van Karnebeek (Canada), along with the support of Dr. R. Leventer (Australia).
Remember to wear pink and / yellow clothing or accessories. You can also decorate your home, place of business, office with pink and yellow balloons, flowers, candies, lanterns. Be creative! Share your photos @PVNHsupport and @PVNHday on Facebook, Instagram and Twitter
using #PVNHDay. You can also join our event on World PVNH Disorder Day on Facebook.
#PinkandYellow #WorldPVNHday #PVNHday