2019 World PVNH Disorder Awareness Day Events

LANDMARKS GLOW FOR WORLD PVNH AWARENESS DAY

Do come back often to view events added as they are connfirmed.

August 5, 2019

BC PLACE, Vancouver, BC, Canada : The lights will come on at dusk and remain on until 11:00 PM.

 

August 7

SWAN BELL TOWER (PERTH, AUSTRALIA)

 

 

SCIENCE WORLD (VANCOUVER, BC, CANADA)

 

In addition to illumination of landmarks, we are extremely pleased to say that Vancouver, where PVNH Support & Awareness is headquartered, has for the third year in a row declared August 7th ‘World Disorder Awareness Day’.

EVERYWHERE

Wear pink and/or yellow on August 7th in support of the 450+ PVNH-affected families from 32 countries around the world as well as those with other types of neuronal heterotopia disorders! 

Families, friends, PVNH specialists and researchers, allies in the rare disease and medical worlds will join us too. Will you be there?

Don’t forget to follow us and share your photos of PVNH Day on Facebook, Instagram and Twitter @PVNHday. You can also add them on the PVNH Support & Awareness public page on Facebook and on Twitter and Instagram @PVNHsupport. Use  #PVNHday #PVNHloud #PVNHsupport            And remember to have fun on that very special day. Feel free to also wish #Happy11thElla!!!