Additionnal ressources COVID-19

We share with you links to recommendations by trusted organizations:

  1. Epilepsy: American Epilepsy Society Position Statement / Epilepsy Foundation Concerns about Coronovirus
  • For individuals affected by FLNA mutation, we recommend reading the following information regarding cardiovascular and pulmonary disease, from the Marfan Foundation (Marfan shares some comorbidities with X-Linked PVNH)

Official Health Resources: