2020 World PVNH Disorder Awareness Day Events

For the 9th year, WORLD PVNH DISORDER AWARENESS DAY will see landmarks light up pink and yellow (or pink or yellow, if only one colour is allowed) for individuals, young and old, affected by Periventricular Nodular Heterotopia (PVNH) and other neuronal heterotopia disorders such as Grey Matter Heterotopia (GMH) and Subcortical Band Heterotopia (SBH) – see complete list of landmarks below. In addition, families and friends around the world will be sporting their brightest pink and yellow clothing or accessories for the PAINT IT PINK AND YELLOW campaign. Let your imagination roam free on how you will express your support. Join our online event for more details, and follow us @PVNHday and @PVNHsupport / share your story in social media with photos and videos using #PVNHday #Paintitpinkandyellow #PVNHloud #PVNHawareness #SBHawareness

We could not make such a positive impact without the support of landmarks around the world. Thank you all for being by our side on our awareness journey. Below is our growing list of confirmed landmarks. We will continue to add new ones until August 7. Do you have a landmark (monument, tower, bridge, mall, city properties, places of workship, etc.) that lights up for a cause? Please let us know on Twitter @PVNHday.

CONFIRMED LANDMARKS AND PROCLAMATIONS

AUSTRALIA

  • Optus Stadium, Perth, WA (August 6)
  • Matagarup Bridge, Perth, WA (August 6)
  • Sky Robbon Bridge, Perth, WA (August 6)
  • Mount Street Pedestrian Bridge (August 6)
  • Northbridge Tunnel (August 6)
  • Telstra Tower, Canberra, ACT
  • State Library of New South Wales, Sydney, NSW
  • Jacaranda Tower, Logan City, QLD
  • Telfer Street Tower, Logan City, QLD
  • City Hall Annex, Toowoomba, QLD
  • Mackay Regional Council, Mackay, QLD
  • SA Power Networks billboard, Keswick, SA
  • Paranaple Convention Centre, Devonport, TAS
  • Archie Graham Community Centre, Warrnambool, VIC – courtesy of City Council
  • Art Centre, Warrnambool, VIC – courtesy of City Council
  • Lighthouse Theatre, Warrnambool, VIC – courtesy of City Council
  • Wodonga Water Tower, Wodonga, VIC
  • Bolte Bridge / Transurban, Melbourne, VIC
  • Yagan Square, Perth, WA
  • Yagan Digital Tower, Perth, WA
  • Trafalgar Bridge, Perth, WA
  • Perth Council House, Perth, WA
  • Swan Bell Tower, Perth, WA
  • QV1, Perth, WA
  • Queens Park Theatre, Geraldton, WA
  • City of Busselton Council Building, Busselton, WA

CANADA

  • Halifax City Hall, Halifax, Nova Scotia (delayed to August 8)
  • CN Tower, Toronto, Ontario (Illumination is visible 30 min. after sunset. A standard light show will run for 8 minutes at the top of every hour).
  • Niagara Falls, Niagara, Ontario (from 10-10:15 pm, courtesy of the Niagara Falls Illumination Board)
  • Calgary Tower, Calgary Alberta
  • High Level Bridge, Edmonton, Alberta
  • Sails of Light at Canada Place, Vancouver, BC
  • Science World, Vancouver, BC
  • BC Place, Vancouver, BC
  • PVNH Support & Awareness HQ, Vancouver, BC
  • Vancouver City Hall, Vancouver, BC
  • Port Coquitlam City Hall, Port Coquitlam, BC
  • Parkside Brewery, Port Moody, BC
  • Nanaimo Bastion, Nanaimo, BC
  • Proclamations in BC:
    • The City of Vancouver has proclaimed August 7 as World PVNH Disorder Awareness Day
    • The City of Victoria has proclaimed August 7 as World PVNH Disorder Awareness Day
    • The City of Nanaimo has proclaimed August 7 as World PVNH Disorder Awareness Day
    • The City of Port Coquitlam has proclaimed August 7 as World PVNH Disorder Awareness Day
    • The Province of British Columbia has proclaimed August 7 as World PVNH Disorder Awareness Day

QATAR

  • The Torch Doha, Doha (from 7-7:30pm)

UNITED KINGDOM

  • Green’s Windmill & Science Centre, Nottingham, England
  • The River Church, Banff, Scotland

UNITED STATES

  • Enger Tower, Duluth, MN
  • Niagara Falls, NY (from 10-10:15 pm, courtesy of the Niagara Falls Illumination Board)
  • Skydance Bridge. Oklahoma City, OK
  • US Bank Center, Milwaukee, WI