Here are templates for request for iluminations and proclamations.
On August 7, we’ll celebrate the 13th edition of World PVNH Disorder Awareness Day.
We are working hard to secure illuminations and proclamations to ‘Paint it Pink & Yellow’ in support of infants, kids and adults affected by Periventricular Nodular Heterotopia (PVNH) as well as those impacted by other forms of Grey Matter Heterotopia (GMH), such as Subcortical Band Heterotopia (SBH). Below is a list of this year’s participating Illuminations, Proclamations and Support Partners. We are so thankful for their support for World PVNH Awareness Day!
We invite adults affected by PVNH, GHM or SBH as well as parents of children impacted by it and their family to wear pink and yellow on August 7th, as well as share their stories in social media.
Tag @PVNHsupport and @PVNHday on Instagram , Threads, and Twitter, and PVNH Support & Awareness on Facebook and LinkedIn, with #PVNH, #GMH or #SBH, #PVNHawareness (or SBH or GMH), #WorldPVNHday and #PVNHloud.
Please help us secure more illuminations by reaching out to local landmarks and goverments (see templates above), and if you wish to submit a story for our website or our social media, please contact yolaine at PVNH support dot com.
2024 CONFIRMED LANDMARKS / LOCATIONS / SUPPORTERS & EVENTS
July 19
- Tourism Cup Invitational in memory of Ella Dupont Bedassie, in Vancouver (BC, Canada) with aftergame party at Regal Beagle, our partner since 2009. Many thanks to The Regal Beagle, Parkside Brewery, The Greek Broadway, Chase Macleod, Yolaine Dupont, Ernst Flach, Michel Dubreuil, Lauren Taylor Illustrations, BC First Nations Forestry Council and all the players for all their support.
August 4
UNITED STATES OF AMERICA
Florida
- PVNH Family Fundraiser with the Fire department, police and EMS, and friends in Tampa.
August 7
NEW ZEALAND
- Palmerston North (Hopwood) Tower, North Palmerston (Pink)
ENGLAND
Cheshire
- Runcorn side of Mersey Gateway Bridge (Pink & Yellow)
- Widnes side of Mersey Gateway Bridge (Pink & Yellow)
CANADA (East to West)
Québec
- Support from Dr. Myers & team at Montreal Children’s Hospital
Ontario
- The CN Tower, Toronto (Pink & Yellow) Lighting begins at sunset, however it won’t become fully visible until the sky darkens sufficiently, approx. 30 minutes later. As it does most evenings, a standard light show will run for 5 minutes at the top of every hour, followed by another light show on the half hour. The night lighting will be visible by webcam on our website: https://www.cntower.ca/live-views
- Niagara Falls (Pink, Yellow, Pink, Yellow) at approximately 10:15pm ET for a 15 minute duration, subject to change according to light conditions. Courtesy of The Niagara Falls Illumination Board. Live cam : https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str) Please be sure to follow health guidelines if you go to Niagara Falls in person.
- Peace Bridge, Fort Erie (Pink & Yellow)
- Mississauga Civic Centre Clock Tower (Pink & Yellow)
- Home of a PVNH family Leadership Team Member, Belle River (Pink & Yellow)
- Windsor City Hall (Pink & Yellow)
Manitoba
- Winnipeg’s Esplanade Riel Bridge (Pink and Yellow)
- WINNIPEG sign (Pink and Yellow)
Alberta
- The Calgary Tower (Pink & Yellow)
- Letbridge City Hall (Pink)
Bristih Columbia
- Burnaby City Hall and the Guideway (Pink & Yellow)
- The Regal Beagle, Vancouver (Pink)
- Burrard Street Bridge, Vancouver (Pink)
- Vancouver Olympic Plaza Arms of the Cauldron (Pink & Yellow)
- Vancouver Convention Centre’s district markers
(Pink & Yellow) - Sails of Light, Vancouver (Pink & Yellow)
- PVNH Support & Awareness Headquarter, Vancouver (Pink and Yellow)
- BC Place, Vancouver (Pink & Yellow)
- Science World, Vancouver (Pink & Yellow)
- Vancouver City Hall (Pink)
- Victoria’s Front (Centre) Fountain of the Parliament Buildings (Pink & Yellow)
- Victoria’s Back (Centennial) Fountain of the Parliament Buildings (Pink & Yellow)
- Victoria’s Confederation Garden Park Fountain (Pink & Yellow)
- Victoria’s Confederation Garden Park Waterfall (Pink & Yellow)
- Victoria’s Ceremonial Entrance of the Parliament Buildings
(Pink & Yellow) - City of Nanaimos Bastion (Pink & Yellow)
- Town of Ladysmith illuminations (Pink & Yellow)
UNITED STATES OF AMERICA ( East to West)
New York State
- Niagara Falls State Park (Yellow, Pink, Yellow, Yellow) at approximately 10:15pm ET for a 15 minute duration, subject to change according to light conditions. Courtesy of The Niagara Falls Illumination Board. Live cam : https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str) Please be sure to follow health guidelines if you go to Niagara Falls in person.
- Peace Bridge, Buffalo (Pink & Yellow)
Florida
- Home of a PVNH family Leadership Team Member, Tampa (Pink & Yellow)
Texas
- Support from Drs. Lhatoo & Dr. Tanton & teams at Texas Comprehensive Epilepsy Center & UTHealth Neurosciences-Texas Medical Center in Houston.
Idaho
- Home of a PVNH Family Leadership Team Member, Firth (Pink & Yellow)
Washington State
Seattle Convention Center (Pink & Yellow)
August 7-14
AUSTRALIA
- Melbourne’s Drum Theater, Dandenong (Pink and Yellow)
August 24
UNITED STATES OF AMERICA
California
- San Diego Convention Center (Pink)
