In February 2012, I was asked by a dear friend, Terry Hoey, who is fighting his grandson Cavan’s rare disease, to participate in the 2nd Belfast Rare Disease Day. I created a video of Ella’s Story and want to share it with you.
Your contributions fuels our mission. Every dollar helps us support families, create and distribute awareness tools, host educational events for families and medical professionals, travel (occasionally) and most importantly: research. Thank you!