If want to join our PVNH, GMH & SBH Community which has provided support to over 1,100 families in 49 countries and counting, please answer all questions in the form below. Most are mandatory. There is an additional request to be made on the FB group page as well (facebook.com/groups/XlinkedPVNH). Please note you must be an affected adult or the parent of an affected child, and you must have a profile photo of you to be granted access. If you are considering getting involved in advocacy or research or you want to advocate or participate in research, we will reach out by email after you have filled out the form. Every family joining our Support Community will also be invited to participate in our International Neuronal Heterotopia Registry.
Thank you,
Yolaine Dupont Founder, Patient Partner, Navigator and Advocate
