If you’d like to join our Community which has provided support to over 1,100 families in 49 countries and counting, please answer all questions below. Most are mandatory. Also note that you must be an affected adult or the parent of an affected child, and you must have a profile photo of you to be granted access. If you are considering getting involved in advocacy or research or you want to advocate or participate in research, we will reach out by email after you have filled out the form. Every family joining our Support Community will also be invited to participate in our Neuronal Heterotopia Registry.
Thank you,
Yolaine Dupont Founder, Patient Partner, Navigator and Advocate
