Founder, CEO, Patient Navigator & Advocate:
Yolaine Dupont, British Columbia, Canada & International
Support Group Moderators & Patient Support Advisors:
Christina Frazier, Colorado, USA & International
Heather Kainz, Minnesota, USA & International
Jane Hartley Jacques, Lancashire, United Kingdom & International
Jennifer Sheffield-Herrington, Texas, USA & International
Natasha Brown, Greater London, United Kingdom & International
Ambassador:
Andrew Bannister, WA, Australia & International
Medical Advisors & Collaborators:
Dr. Bernard Chang, Neurologist / Epileptologist, Israel Deaconess Medical Center, Boston, MA, USA
Dr. Robert Guillerman, Radiologist, Texas Children’s Hospital, Houston, TX, USA
Dr. Grazia Mancini, Clinical Geneticist, Sophia Hospital, Rotterdam, Netherlands / Neuro-MIG
Dr. Tina Melicoff, Medical Director, Lung Transplant Program, Texas Children Hospital, TX, USA
Dr. Ken Myers, Pediatric Neurologist / Epileptologist, Montreal Children’s Hospital/McGill University, Montreal, Quebec, Canada
Dr. Shaine Morris, Medical Director, Cardiovascular Genetics, Texas Children’s Hospital, Houston, TX, USA
Dr. Renske Oegema, Clinical Geneticist, University Medical Center,Utrecht, Netherlands / Neuro-MIG
Carlos Cardoso, Research Director; Alfonso Represa, Research Director; Jean-Bernard Manent, Research Scientist, and many more. Team Cardoso-Represa, INMED / INSERM, Marseille, France / Neuro-MIG
Strategic Advisor:
Anick Desnoyers, Québec, Canada
