Ella Forever : The beginning of my journey with my angel Ella in my heart
Everyone Loves Little Angels : A tribute to my daughter Ella
: About dealing with a rare disease, by Ella’s mom
Breaking the silence: Cam’s story and fight with PVNH
Your contributions fuels our mission. Every dollar helps us support families, create and distribute awareness tools, host educational events for families and medical professionals, travel (occasionally) and most importantly: research. Thank you!
