PVNH Support & Awareness TM connects families together, advocates and educates patients, family members and medical professionals about Periventricular Nodular Heterotopia and other forms of neuronal heterotopia disorders. We also enable research studies to help improve diagnosis, care and treatments with the hope of one day finding a cure.
Our goal is to positively impact the lives of affected individuals and their families.
VISION :
A world where no affected families are left to fend for themselves, where medical professionals can recognize the disorders, provide care to treat symptoms and improve quality of life, and where research enables genetic discoveries, faster diagnosis, improved care options and more efficient medical treatments.
