2021 World PVNH Disorder Awareness Day

On August 7, 2021 we will celebrate the 10th edition of WORLD PVNH DISORDER AWARENESS DAY.  PVNH, GMH and SBH families and friends will virtually gather around the world to celebrate by sporting their brightest pink and yellow clothing or accessories for the PAINT IT PINK AND YELLOW campaign.  Starting on August 2nd, landmarks will once again light up pink and yellow (or pink or yellow, if only one colour is allowed) and governements will officially proclaim August 7 as World PVNH Disorder Awareness Day (see list below).  All to show individuals, young and old, affected by Periventricular Nodular Heterotopia (PVNH) and other neuronal heterotopia disorders such as Grey Matter Heterotopia (GMH) and Subcortical Band Heterotopia (SBH) they are not alone. 

As landmarks and events are confirmed, they will be added to a list below. We invite you to join us and let your imagination roam free on how you will express your support. For more details, follow @PVNHday and @PVNHsupport and don’t forget to share your story in social media with photos and videos using #PVNHday #Paintitpinkandyellow #PVNHloud #PVNHawareness #SBHawareness

We could not make such a positive impact without the support of landmarks and allies around the world. Thank you all for being by our side on our awareness journey. Do you have a landmark (monument, tower, bridge, mall, city properties, places of workship, etc.) that lights up for a cause? Please let us know!

CONFIRMED LANDMARKS AND PROCLAMATIONS ON AUGUST 7 LOCALLY, UNLESS OTHERWISE NOTED  *** Please remember to follow the local health guidelines if you choose to attend an iluumination live***

Aug. 2 –

CANADA

  • High Level Bridge, Edmonton (Pink and Yellow)

Aug. 6 –

CANADA

  • Vancouver Convention Centre, British Columbia (Pink and Yellow)

Aug. 7 –

AUSTRALIA

  • Telstra Tower, Canberra, ACT (Yellow)
  • The Big Banana, Coff’s Harbour, NSW (Pink)
  • Newcastle Clock Tower, NSW (Pink)
  • Freemantle Prison Gatehouse, Freemantle, WA (Pink)
  • Optus Stadium, Perth, WA (Pink)
  • Council House, Perth, WA (Yellow)
  • Bell Tower, Perth, WA (Pink and Yellow)
  • Trafalgar Bridge, Perth, WA (Yellow)
  • Bolte Bridge, Melbourne, VIC (Pink)
  • AAMI Park, Melbourne, VIC (Pink and Yellow)
  • Wodonga Water Tower, VIC (Pink)
  • Mooroopna Water Tower, Mooroopna, VIC (Pink and Yellow, alternating)
  • Monash Park Tree, Shepparton, VIC (Pink and Yellow, alternating)
  • Paranaple Convention Centre, TAS (Pink)

CANADA

  • Halifax City Hall, Novas Scotia (Pink)
  • Niagara Falls, Ontario  – courtesy of the Niagara Falls Illumination Board (Pink and Yellow). The Illumination will be on for 15 minutes between approximately 9:45 and 10pm (EST) and can be viewed on live cam here.
  • CN Tower, Toronto, Ontario (Pink and Yellow). Lighting begins at sunset, however it won’t become fully visible until the sky darkens sufficiently approximately 30 minutes later. As it does most evenings, a standard light show will run for 8 minutes at the top of every hour, followed by another light show on the half hour. The night lighting will be visible by webcam on CN Tower’s website: https://www.cntower.ca/en-ca/home.html#earthcams
  • Lethbridge City Hall, Alberta (Pink and Yellow)
  • The Calgary Tower, Calgary, Alberta (Pink and Yellow)
  • Telus Sparks Science Centre, Calgary, Alberta (Pink and Yellow)
  • Sails of Light at Canada Place,  Vancouver, British Colombia (Pink and Yellow)
  • Science World, Vancouver, British Colombia (Pink and Yellow)
  • Vancouver Convention Centre, British Columbia (Pink and Yellow)
  • BC Place, Vancouver, British Columbia (Pink and Yellow)
  • Special lighting feature at Lafarge Lake, Coquilam,British Colombia (Pink)
  • Proclamation from the Province of British Columbia
  • Proclamation from the City of Halifax, Nova Scotia

NEW ZEALAND

  • Michael Fowler Cenre, Wellingon (Pink)

UNITED KINGDOM

  • Spinnaker Tower, Portsmouth (Pink and Yellow)

UNITED STATES

  • Enger Tower, Duluth, MN (Pink)
  • Sperry Tower, Eagan, MN (Pink and Yellow)
  • Lowry Bridge, Minneanapolis, MN (Pink)
  • Niagara Falls, NY   – courtesy of the Niagara Falls Illumination Board (Pink and Yellow). The Illumination will be on for 15 minutes between approximately 9:45 and 10pm (EST) and can be viewed on live cam here.

Aug. 8 –

UNITED STATES

  • Rock & Roll Hall of Fame, Cleveland, OH (Pink and/or Yellow)

Aug. 9 –

UNITED STATES

  • Skydance Bridge, Oklahoma City, OK (Pink and Yellow)