Are you #pinkandyellow ready? August 7, 2022 will celebrate the 11th edition of WORLD PVNH DISORDER AWARENESS DAY. PVNH, GMH and SBH families and friends will virtually gather around the world to celebrate by sporting their brightest pink and yellow clothing or accessories for the PAINT IT PINK AND YELLOW campaign.
Landmarks will once again light up pink and yellow (or either pink or yellow) to support more than 700 affected families in 36 countries (see landmarks list below). All to show individuals, young and old, affected by Periventricular Nodular Heterotopia (PVNH) and other neuronal heterotopia disorders such as Grey Matter Heterotopia (GMH) and Subcortical Band Heterotopia (SBH) they are not alone.
Do you have a landmark in your city, state or country that lights up for causes? Let us know so we can reach out!
As landmarks and events are confirmed, they will be added to a list below. We invite you to join us and let your imagination roam free on how you will express your support. For more details, follow @PVNHday and @PVNHsupport and don’t forget to share your story in social media with photos and videos using #PVNHday #Paintitpinkandyellow #PVNHloud #PVNHawareness #SBHawareness
We could not make such a positive impact without the support of landmarks and allies around the world. Thank you all for being by our side on our awareness journey. Do you have a landmark (monument, tower, bridge, mall, city properties, places of worship, etc.) that lights up for a cause? Please let us know!
CONFIRMED LANDMARKS AND PROCLAMATIONS ON AUGUST 7 LOCALLY, UNLESS OTHERWISE NOTED *** Please remember to follow the local health guidelines if you choose to attend an illumination live***
Aug. 7 –
- Matagarup Bridge (Pink)
- Sky Ribbon Bridge (Pink)
- Mount Street Bridge (Pink)
- Northbridge Tunnel (Pink)
- Joondalup Drive Bridge (Pink)