2022 World PVNH Disorder Awareness Day

Thank you to our PVNH Community, and to all our World PVNH Day illumination partners and allies for making our 11th edition a success. We could not do it without you!

Check out the list of more than 40 illuminations and proclamations below for 2022 in support of all affected by PVNH, GMH and SBH. You can view photos and read stories on our Facebook, Instragram and Twitter accounts (@PVNHsupport/ @PVNHday)

Are you #pinkandyellow ready? August 7, 2022 will celebrate the 11th edition of WORLD PVNH DISORDER AWARENESS DAY.  PVNH, GMH and SBH families and friends will virtually gather around the world to celebrate by sporting their brightest pink and yellow clothing or accessories for the PAINT IT PINK AND YELLOW campaign.  Landmarks (see list below) will once again light up pink and yellow (or either pink or yellow) to support more than 700 affected families in 38 countries.  All to show individuals, young and old, affected by Periventricular Nodular Heterotopia (PVNH) and other neuronal heterotopia disorders such as Grey Matter Heterotopia (GMH) and Subcortical Band Heterotopia (SBH) they are not alone.   See our Illuminations Partners below!

As landmarks and events are confirmed, they will be added to a list below. We invite you to join us and let your imagination roam free on how you will express your support. For more details, follow @PVNHday and @PVNHsupport and don’t forget to share your story in social media with photos and videos using #PVNHday #Paintitpinkandyellow #PVNHloud #PVNHawareness #GMHawareness or #SBHawareness.

We could not make such a positive impact without the support of landmarks and allies around the world. Thank you all for being by our side on our awareness journey. 

LIST OF CONFIRMED LANDMARKS ILLUMINATING ON AUGUST 4th and 7th LOCALLY,  UNLESS OTHERWISE NOTED  AS WELL AS PROCLAMATIONS RECEIVED. *** Please remember to follow the local health guidelines if you choose to attend an illumination live***

August 4-

AUSTRALIA

  • Story Bridge, Brisbane, QLD (Pink and Yellow)
  • Victoria Bridge, Brisbane, QLD (Pink and Yellow)
  • Reddacliff Place sculptures, Brisbane, QLD (Yellow)
  • Wickham Terrace Car Park architectural wall, Brisbane, QLD (Yellow)
  • Breakfast Creek Bridge, Newstead, Brisbane, QLD (Yellow)

CANADA (from East to West)

  • Brock University’s Schmon Tower, St. Catherines, ON (Pink)
  • Special lighting features at Lafarge Lake, Coquitlam, BC (Pink and Yellow)
  • Pinetree Way, Coquitlam, BC (Pink and Yellow)

August 6-

AUSTRALIA

  • Matagarup Bridge, Perth, WA  (Pink)
  • Joondalup Drive Bridge, Perth, WA (Pink)
  • Sky Ribbon Bridge, Perth, WA (Pink)
  • Mount Street Bridge, Perth, WA (Pink)
  • Northbridge Tunnel, Perth, WA (Pink)

August 7-

AUSTRALIA (from East to West)

  • The Big Banana, Coffs Harbour, NSW (Pink)
  • Marlston Hill Lookout, Bunburry, WA (Pink)
  • Koombana Bay Footbridge, Bunburry, WA (Pink)
  • Koombana Bay Foreshore, Bunburry, WA (Pink)
  • Marlston Waterfront, Bunburry, WA (Pink)
  • Guppy Park, Bunburry, WA (Pink)
  • The Navigators at the Koombana Drive roundabout, Bunburry, WA (Pink) 
  • Richmond Reserve, Bunburry, WA (Pink)
  • The historic Arrol Crane at Jetty Road, Bunburry, WA (Pink)
  • Bell Tower, Perth, WA (Pink)

CANADA (from East to West)

  • Charlottetown City Hall, Charlottetown, Prince-Edward-Island (Pink and/or Yellow)
  • Halifax City Hall, Halifax, Nova Scotia (Pink)
  • Brant Street Pier, Burlington, ON (Pink and Yellow)
  • Niagara Falls, Ontario  – courtesy of the Niagara Falls Illumination Board (Pink and Yellow). **The Illumination will be on for 15 minutes at 10pm (EST) and can be viewed on live cam here. Please note that all Illumination times are approximate and subject to change according to light conditions.
  • CN Tower, Toronto, Ontario (Pink and Yellow). **Lighting begins at sunset, however it won’t become fully visible until the sky darkens sufficiently approximately 30 minutes later. As it does most evenings, a standard light show will run for 8 minutes at the top of every hour, followed by another light show on the half hour. The night lighting will be visible by webcam on CN Tower webcam:
    https://www.cntower.ca/#earthcam
  • Calgary Tower, Calgary, Alberta (Pink and Yellow)
  • Bloedel Conservatory, Vancouver, British Columbia (Pink and Yellow)
  • Canada Place Sails of Light, Vancouver, British Columbia(Pink and Yellow)
  • BC Place, Vancouver, British Columbia(Pink and Yellow)
  • Vancouver Convention Centre, Vancouver, British Columbia(Pink & Yellow)
  • Science World, Vancouver, British Columbia (Pink & Yellow), ** Exceptionally from 4pm-8pm, then the lights will be blue and yellow in support for the people of the Ukraine from 8p-11pm.
  • Burrard Bridge, Vancouver, British Columbia (Pink)
  • Vancouver City Hall, Vancouver, British Columbia (Pink)
  • The Bastion, Nanaimo, British Columbia (Pink & Yellow)

NEW ZEALAND

  • Michael Fowler Centre, Wellington, New Zealand (Pink & Yellow) **The lights will come on at 6pm and run through to 5am the next day.**
  • The Big Fruit Reserve, Cromwell, New Zealand (Pink & Yellow)

SPAIN

  • Puete de los Siete Ojos (The Bridge of the Seven Seas), Telde (Pink and Yellow

UNITED KINGDOM

  • Greens Windmill & Science Centre, Sneinton, Nottingham (Pink and Yellow)

UNITED STATES (from East to West)

  • Fore River Bridge, Quincy, MA (Pink and Yellow)
  • Zakim Bridge, Boston, MA (Pink and Yellow)
  • Longfellow Bridge, Boston, MA (Pink and Yellow)
  • Burns Bridge, Worcester, MA (Pink and Yellow)
  • Niagara Falls, New York State – courtesy of the Niagara Falls Illumination Board (Pink and Yellow). **The Illumination will be on for 15 minutes at 10pm (EST) and can be viewed on live cam here. Please note that all Illumination times are approximate and subject to change according to light conditions
  • Rock & Roll Hall of Fame, Cleveland, Ohio ( Pink or Yellow)
  • Main Street Square spires, Rapid City, South Dakota (Yellow)

PROCLAMATIONS

  • Proclamation from the City of Halifax, Nova Scotia, Canada
  • Proclamation from the City of Port Moody, British Columbia, Canada
  • Proclamation from the City of Vancouver, British Columbia, Canada
  • Proclamation from the Province of British Columbia, Canada