Since inception in 2009, PVNH Support & Awareness has been active in raising awareness for neuronal heterotopia disorders. In 2012, we created the first World PVNH Disorder Awareness Day which is celebrated yearly on August 7th. In 2014, we followed with the first World PVNH Awareness Month: March.
Your contributions fuels our mission. Every dollar helps us create and distribute awareness tools, host educational events for families and medical professionals, travel (occasionally) and most importantly: research. Thank you!