In August 2012, as Yolaine Dupont prepared to posthumously celebrate her daughter Ella’s 4th birthday, she united PVNH experts from around the globe to declare August 7 “World PVNH Disorder Awareness Day”. First to sign the declaration, was Dr. S. Robertson (New Zealand), followed by Drs. C. Cardoso and C. Goizet (France), B. Chang (USA), Dr. Kasper (Germany), R. Guerrini (Italy), R. de Coo (Netherlands), D. Morris-Rosendhal (UK), C. Van Karnebeek (Canada), Dr. Gil-Nadal (Spain) along with the support of Dr. R. Leventer (Australia).
Dr Robertson, first to sign the PVNH Declaration in 2012, 2 weeks before our 1st World PVNH Day
Dr. Chang signs in the USA
Dr. Kasper signs in Germany
Dr Gil-Nadal signs in Spain
