Thank you to our PVNH Community, and to all our World PVNH Day illumination partners and allies for helping to make our 13th edition a success. We could not do it without you!
Check out the list of illuminations and proclamations below for 2024 in support of all affected by PVNH, GMH and SBH. You can view photos and read stories on our Facebook, Instragram and Twitter accounts (@PVNHsupport/ @PVNHday)
Are you #pinkandyellow ready? August 7, 2024 will celebrate the 13th edition of WORLD PVNH DISORDER AWARENESS DAY. PVNH, GMH and SBH families and friends will virtually gather around the world to celebrate by sporting their brightest pink and yellow clothing or accessories for the PAINT IT PINK AND YELLOW campaign. Landmarks (see list below) will once again light up pink and yellow (or either pink or yellow) to support more than 980 affected families in 46 countries. All to show individuals, young and old, affected by Periventricular Nodular Heterotopia (PVNH) and other neuronal heterotopia disorders such as Grey Matter Heterotopia (GMH) and Subcortical Band Heterotopia (SBH) they are not alone. See our Illuminations Partners below!
As landmarks and events are confirmed, they will be added to a list below. We invite you to join us and let your imagination roam free on how you will express your support. For more details, follow @PVNHday and @PVNHsupport and don’t forget to share your story in social media with photos and videos using #PVNHday #Paintitpinkandyellow #PVNHloud #PVNHawareness #GMHawareness or #SBHawareness.
We could not make such a positive impact without the support of landmarks and allies around the world. Thank you all for being by our side on our awareness journey.
LIST OF CONFIRMED LANDMARKS ILLUMINATING AS WELL AS PROCLAMATIONS RECEIVED WILL BE ADDED AS THEY ARE RECEIVED.
