Thank you to our PVNH Community, and to all our World PVNH Day illumination partners and allies for helping to make our 13th edition a success. We could not do it without you!
Check out the list of illuminations and proclamations below for 2024 in support of all affected by PVNH, GMH and SBH. You can view photos and read stories on our Facebook, Instragram and Twitter accounts (@PVNHsupport/ @PVNHday)
Are you #pinkandyellow ready? August 7, 2024 will celebrate the 13th edition of WORLD PVNH DISORDER AWARENESS DAY. PVNH, GMH and SBH families and friends will virtually gather around the world to celebrate by sporting their brightest pink and yellow clothing or accessories for the PAINT IT PINK AND YELLOW campaign. Landmarks (see list below) will once again light up pink and yellow (or either pink or yellow) to support more than 980 affected families in 46 countries. All to show individuals, young and old, affected by Periventricular Nodular Heterotopia (PVNH) and other neuronal heterotopia disorders such as Grey Matter Heterotopia (GMH) and Subcortical Band Heterotopia (SBH) they are not alone. See our Illuminations Partners below!
Help us secure more illuminations by reaching out to local landmarks and goverments (see template), and if you wish to submit a story for our website or our social media, please contact yolaine at PVNH support dot com.
As landmarks and events are confirmed, they will be added to a list below. We invite you to join us and let your imagination roam free on how you will express your support. For more details, follow @PVNHday and @PVNHsupport and don’t forget to share your story in social media with photos and videos using #PVNHday #Paintitpinkandyellow #PVNHloud #PVNHawareness #GMHawareness or #SBHawareness.
We could not make such a positive impact without the support of landmarks and allies around the world. Thank you all for being by our side on our awareness journey.
LIST OF CONFIRMED LANDMARKS ILLUMINATING AS WELL AS PROCLAMATIONS RECEIVED WILL BE ADDED AS THEY ARE RECEIVED.
2024 CONFIRMED LANDMARKS / LOCATIONS / SUPPORTERS & EVENTS
July 19
- Tourism Cup Invitational in memory of Ella Dupont Bedassie, in Vancouver (BC, Canada) with aftergame party at Regal Beagle, our partner since 2009. Many thanks to The Regal Beagle, Parkside Brewery, The Greek Broadway, Chase Macleod, Yolaine Dupont, Ernst Flach, Michel Dubreuil, Lauren Taylor Illustrations, BC First Nations Forestry Council and all the players for all their support.
August 4
UNITED STATES OF AMERICA
Florida
- PVNH Family Fundraiser with the Fire department, police and EMS, and friends in Tampa.
August 7
NEW ZEALAND
- Palmerston North (Hopwood) Tower, North Palmerston (Pink)
ENGLAND
Cheshire
- Runcorn side of Mersey Gateway Bridge (Pink & Yellow)
- Widnes side of Mersey Gateway Bridge (Pink & Yellow)
CANADA (East to West)
Québec
- Support from Dr. Myers & team at Montreal Children’s Hospital
Ontario
- The CN Tower, Toronto (Pink & Yellow) Lighting begins at sunset, however it won’t become fully visible until the sky darkens sufficiently, approx. 30 minutes later. As it does most evenings, a standard light show will run for 5 minutes at the top of every hour, followed by another light show on the half hour. The night lighting will be visible by webcam on our website: https://www.cntower.ca/live-views
- Niagara Falls (Pink, Yellow, Pink, Yellow) at approximately 10:15pm ET for a 15 minute duration, subject to change according to light conditions. Courtesy of The Niagara Falls Illumination Board. Live cam : https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str) Please be sure to follow health guidelines if you go to Niagara Falls in person.
- Peace Bridge, Fort Erie (Pink & Yellow)
- Mississauga Civic Centre Clock Tower (Pink & Yellow)
- Home of a PVNH family Leadership Team Member, Belle River (Pink & Yellow)
- Windsor City Hall (Pink & Yellow)
Manitoba
- Winnipeg’s Esplanade Riel Bridge (Pink and Yellow)
- WINNIPEG sign (Pink and Yellow)
Alberta
- The Calgary Tower (Pink & Yellow)
- Letbridge City Hall (Pink)
Bristih Columbia
- Burnaby City Hall and the Guideway (Pink & Yellow)
- The Regal Beagle, Vancouver (Pink)
- Burrard Street Bridge, Vancouver (Pink)
- Vancouver Olympic Plaza Arms of the Cauldron (Pink & Yellow)
- Vancouver Convention Centre’s district markers
(Pink & Yellow) - Sails of Light, Vancouver (Pink & Yellow)
- PVNH Support & Awareness Headquarter, Vancouver (Pink and Yellow)
- BC Place, Vancouver (Pink & Yellow)
- Science World, Vancouver (Pink & Yellow)
- Vancouver City Hall (Pink)
- Victoria’s Front (Centre) Fountain of the Parliament Buildings (Pink & Yellow)
- Victoria’s Back (Centennial) Fountain of the Parliament Buildings (Pink & Yellow)
- Victoria’s Confederation Garden Park Fountain (Pink & Yellow)
- Victoria’s Confederation Garden Park Waterfall (Pink & Yellow)
- Victoria’s Ceremonial Entrance of the Parliament Buildings
(Pink & Yellow) - City of Nanaimos Bastion (Pink & Yellow)
- Town of Ladysmith illuminations (Pink & Yellow)
UNITED STATES OF AMERICA ( East to West)
New York State
- Niagara Falls State Park (Yellow, Pink, Yellow, Yellow) at approximately 10:15pm ET for a 15 minute duration, subject to change according to light conditions. Courtesy of The Niagara Falls Illumination Board. Live cam : https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str) Please be sure to follow health guidelines if you go to Niagara Falls in person.
- Peace Bridge, Buffalo (Pink & Yellow)
Florida
- Home of a PVNH family Leadership Team Member, Tampa (Pink & Yellow)
Texas
- Support from Drs. Lhatoo & Dr. Tanton & teams at Texas Comprehensive Epilepsy Center & UTHealth Neurosciences-Texas Medical Center in Houston.
Idaho
- Home of a PVNH Family Leadership Team Member, Firth (Pink & Yellow)
Washington State
Seattle Convention Center (Pink & Yellow)
August 7-14
AUSTRALIA
- Melbourne’s Drum Theater, Dandenong (Pink and Yellow)
August 24
UNITED STATES OF AMERICA
California
- San Diego Convention Center (Pink)
