2024 World PVNH Day, also in support of GMH and SBH

Thank you to our PVNH Community, and to all our World PVNH Day illumination partners and allies for helping to make our 13th edition a success. We could not do it without you!

Check out the list of illuminations and proclamations below for 2024 in support of all affected by PVNH, GMH and SBH. You can view photos and read stories on our Facebook, Instragram and Twitter accounts (@PVNHsupport/ @PVNHday)

Are you #pinkandyellow ready? August 7, 2024 will celebrate the 13th edition of WORLD PVNH DISORDER AWARENESS DAY.  PVNH, GMH and SBH families and friends will virtually gather around the world to celebrate by sporting their brightest pink and yellow clothing or accessories for the PAINT IT PINK AND YELLOW campaign.  Landmarks (see list below) will once again light up pink and yellow (or either pink or yellow) to support more than 980 affected families in 46 countries.  All to show individuals, young and old, affected by Periventricular Nodular Heterotopia (PVNH) and other neuronal heterotopia disorders such as Grey Matter Heterotopia (GMH) and Subcortical Band Heterotopia (SBH) they are not alone.   See our Illuminations Partners below!

Help us secure more illuminations by reaching out to local landmarks and goverments (see template), and if you wish to submit a story for our website or our social media, please contact yolaine at PVNH support dot com.

As landmarks and events are confirmed, they will be added to a list below. We invite you to join us and let your imagination roam free on how you will express your support. For more details, follow @PVNHday and @PVNHsupport and don’t forget to share your story in social media with photos and videos using #PVNHday #Paintitpinkandyellow #PVNHloud #PVNHawareness #GMHawareness or #SBHawareness.

We could not make such a positive impact without the support of landmarks and allies around the world. Thank you all for being by our side on our awareness journey. 

LIST OF CONFIRMED LANDMARKS ILLUMINATING AS WELL AS PROCLAMATIONS RECEIVED WILL BE ADDED AS THEY ARE RECEIVED.

2024 CONFIRMED LANDMARKS / LOCATIONS / SUPPORTERS & EVENTS

July 19

  • Tourism Cup Invitational in memory of Ella Dupont Bedassie, in Vancouver (BC, Canada) with aftergame party at Regal Beagle, our partner since 2009. Many thanks to The Regal Beagle, Parkside Brewery, The Greek Broadway, Chase Macleod, Yolaine Dupont, Ernst Flach, Michel Dubreuil, Lauren Taylor Illustrations, Framing the Future golf tournament and Haleigh Callison, and all the players for all their support.

August 7

CANADA (West to East)

Bristih Columbia

  • Burnaby City Hall and the Guideway (Pink & Yellow)
  • Vancouver Convention Centre’s district markers
    (Pink & Yellow)
  • Vancouver Olympic Plaza Arms of the Cauldron (Pink & Yellow)
  • Victoria’s Ceremonial Entrance, Front (Centre) Fountain and Back (Centennial) Fountain of the Parliament Buildings
    (Pink & Yellow)
  • Victoria’s Confederation Garden Park Fountain and Waterfall (Pink & Yellow)
  • City of Nanaimos Bastion (Pink & Yellow)
  • BC Place, Vancouver (Pink & Yellow)
  • Science World, Vancouver (Pink & Yellow)
  • Vancouver City Hall (Pink)
  • Burrard Street Bridge, Vancouver (Pink)
  • The Regal Beagle, Vancouver (Pink)
  • PVNH Support & Awareness Headquarter, Vancouver (Pink and Yellow)

Alberta

  • The Calgary Tower (Pink & Yellow)
  • Letbridge City Hall (Pink)

Manitoba

  • Esplanade Riel Bridge and WINNIPEG sign (Pink and Yellow)

Ontario

  • Niagara Falls (Pink, Yellow, Pink, Yellow) at approximately 10:15pm ET for a 15 minute duration, subject to change according to light conditions. Courtesy of The Niagara Falls Illumination Board. Live cam : https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str) Please be sure to follow health guidelines if you go to Niagara Falls in person.
  • Peace Bridge, Fort Erie (Pink & Yellow)

Québec

  • Support from Dr. Myers & team at Montreal Children’s Hospital

UNITED STATES OF AMERICA

California

  • San Diego Convention Center (Pink)

Texas

  • Support from Drs. Lhatoo & Dr. Tanton & teams at Texas Comprehensive Epilepsy Center & UTHealth Neurosciences-Texas Medical Center in Houston.

New York State

  • Niagara Falls State Park (Yellow, Pink, Yellow, Yellow) at approximately 10:15pm ET for a 15 minute duration, subject to change according to light conditions. Courtesy of The Niagara Falls Illumination Board. Live cam : https://www.earthcam.com/canada/niagarafalls/?cam=niagarafalls_str) Please be sure to follow health guidelines if you go to Niagara Falls in person.
  • Peace Bridge, Buffalo (Pink & Yellow)

NEW ZEALAND

  • Palmerston North (Hopwood) Tower, North Palmerston (Pink)

August 7-14

AUSTRALIA

  • Melbourne’s Drum Theater, Dandenong (Pink and Yellow)