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Tag Archives: Sage’s story
MEET SAGE, almost 2 years old – USA
Sage brings so much love and joy into our home and has taught us to treasure all the small strides forward. Continue reading →
Posted in #MarchOnPVNH, Stories
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Tagged #PVNHawareness, Aicardi Syndrome, Infantile Spasms, MarchOnPVNH, Sage's story
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Sage’s Story
The following month was a blur of doctor visits, trying a few different medication options, but after she was still having multiple seizures a day, and one day they just felt different to me, we were back in the ER and ended up being admitted overnight for observation because she was started on phenobarbital (can cause decreased breathing and heart rate, so they needed to make sure she coped with it ok). Later that same week she had an MRI. Continue reading →
Posted in Stories, Word PVNH Awareness Day
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Tagged cortical malformation, PVNH, Sage's story, Sage's story 2022, Stories
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